SIOLD Registries

SIOLD REGISTRIES

General registries for all interstitial and orphan lung diseases (time needed to report a case: 1-2 minutes)

Access to the recording system is restricted to physician members of SIOLD group.

To report a case of rare lung disease to SIOLD registries, you must register as a participating physician by contacting SIOLD through the contact form. Participation is free and case reporting is very fast.

The data of patients are registered in a anonymous way and with the explicit consent of the patient. These data are used by the inquiring doctors of the SIOLD group or partners with whom a formal collaboration was established. The data are not used for commercial purposes or advertising executives, and are not transmitted in thirds. They are stored in a secure server and protected by identifiers and passwords.

For more information, you can contact us through the contact form.

 Last updated on 02/07/2019 at 12:43