The SIOLD Registries are an efficient recruitment tool for clinical, genetic, and epidemiological research on interstitial lung diseases and rare lung diseases.
The SIOLD project aims at improving the diagnosis and management of interstitial and orphan lung diseases in Switzerland, providing information written by experts and support to physicians and patients, and promoting clinical research.
This activity started in 2002 with the development of a nationwide network of pulmonary physicians interested in rare (so-called “orphan”) pulmonary diseases. To facilitate clinical research on these diseases, case registries were implemented at a national level, and physicians of the network started to report cases anonymously with patient’s consent. This activity received approval and support from the Swiss Respiratory Society.
With a network of 200 pulmonary physicians participating to case reporting, the SIOLD Registries constitute an efficient recruitment tool for clinical, genetic, and epidemiological research on interstitial and orphan pulmonary diseases. The SIOLD Registries are open for collaboration with national and international partners and institutions.
The SIOLD core panel works at improving strategies for the diagnosis and management of these complex disorders, especially among the various Swiss University Centres in pulmonary medicine.
To report a case to the SIOLD Registries, you need to be identified as a participating physician by contacting SIOLD. Participation is free and open to all swiss respiratory physicians. Reporting a case requires only one minute. Participants are welcome to submit study proposals and use the recruitment tool for research purpose.