The Swiss online Brain Health Registry was designed by the University Hospitals of Geneva and seven other Hospitals/Research Centers throughout Switzerland. Inspired by other registries of this type set up in the USA, the United Kingdom, Scotland and the Netherlands, it contributes to the creation of a global database of research partners who wish to contribute to research on neurodegenerative diseases and more particularly on Alzheimer's disease.
Volunteers who join the register provide a certain amount of information and become potential research partners. Researchers can then select a panel from them according to the selection and exclusion criteria of their studies, contact them and include them in their studies.
Facilitating the recruitment phase for studies in this field is essential. Improved living conditions and medical advances mean that more and more people are reaching old age. The incidence of neurodegenerative diseases is increasing accordingly. The aim of this scientific partnership between volunteers and researchers is to advance research on neurodegenerative diseases, in particular by developing preventive therapeutic approaches and early diagnosis techniques.To achieve this, the BHR seeks to reach a relatively young target population (50 years and older) who would not normally have the opportunity to come into contact with a memory clinic. At the same time, the research partners have the opportunity to access state-of-the-art technologies and innovative treatments and drugs.
The University Hospitals of Geneva (HUG), the University Hospital of Vaud (CHUV), the Cantonal Hospital of Fribourg (HFR), the University Hospital of Bern (UPD), the University Hospital of Basel (Felix Platter), the Center for Prevention and Dementia Therapy of the University of Zurich,, the University Hospital of St. Gallen (KSSG), the Regional Hospital of Lugano (EOC) have thus formed a national network that allows for optimal coordination to develop research for the treatment of neurodegenerative diseases. This Swiss network is an additional tool that is part of the synergy of European and global networks in Alzheimer's research. Their cooperation and coordination should lead to significant advances in the treatment of Alzheimer's disease in particular