Patient Registry

Purposes of the registry are:

  • To share information about patients in order to facilitate collaboration for funding, research and publications
  • To create systematic phenotyping of GnRH deficient patients

Patient Registry Charter

  • To receive a copy of the Charter please contact Andrew Dwyer.
  • To participate in this registry, please return the signed Charter to Andrew Dwyer.

Inclusion Criteria:

  • Idiopathic hypogonadotropic hypogonadism
  • Kallmann syndrome
  • Constitutional delay of growth and puberty
  • Combined pituitary hormone deficiency

Who can submit a patient:

Any investigator in this COST Action (BM1105) can submit de-identified patient data if they have valid patient consent by a document approved at their institution.

How to submit a patient:

  • Download THIS password protected file
  • Obtain a password to open the form by submitting a request.
  • IMPORTANT: Please verify that Javascript is activated for this document before filling it out.
  • Complete both pages of the form
  • Rename, Save and Print a copy the document BEFORE sending it
  • Submit the form by using the CLICK TO SEND button at the end of the form
  • The form will be reviewed and you may be contacted to provide clarifications
  • Your submission and subsequent inclusion in the database will be confirmed by email

Download the Phenotype form HERE

 Last updated on 17/06/2018 at 14:59