Patient Advocates


Patient advocates (WG5)

play a key role in this COST Action. This group represents the interests of patients and families affected by GnRH deficiency to ensure that the patient perspective is included in the Action’s work .

Specific Aims

  • Work collaboratively with the Working Groups to help make key scientific publications accessible in lay language
  • Help develop patient-centered education and advocacy materials
  • Provide links for peer-to-peer support
  • Help clinicians and scientists better understand patient perspectives and experiences by contributing to training and education programs

Please click on the names below to learn more about our patient advocates:

Neil Smith

Janet Pinfield

 Last updated on 08/05/2019 at 10:17